by jesspants on November 3rd, 2009
I found out that my sons great aunty has tested positive for a genetic disease that can cause multiple tumors that sometimes turn malignant and overstimulate the adrenal gland causing heart problems.
She told me this information so that I can get my two year old son checked for this disease and has asked me not to tell my sons father who is not currently a part of my sons life. His mother knows about the disease but has chosen not to tell him.
Even if my son tests negative (the tests are in progress and will be ready in about 4 months) it does not rule out his dad as being a carrier. I have trouble sleeping at night keeping this from my sons dad when I could email him and let him know about this, but if I do it will cause serious conflict in the family in that my sons dad might resent his mother for not telling him and he is already estranged from his own dad and he will disown his great aunty for speaking to me because he strongly resents me for having his child. Considering what might happen if he does have the disease and it is misdiagnosed I think it is worth the possible turmoil it will cause within the family. Just wanted to hear other peoples thoughts cos I feel so alone and I am very stressed about all this. Thank you
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Comments
First, stop panicking. Just because some Great Aunt tested positive, doesn't mean that your son will. Shouldn't she be telling her daughters or sons first before scaring the hell out of others? Why is this thrown toward your son? I think someone is trying to scare you.
by rose1980 on November 3rd, 2009
+6 i have read this twice. i also have been torn between trying to make everyone happy. your words, I think it is worth the possible turmoil it will cause within the family. you just need support to have the courage perhaps. you have mine. i will do anything i can to help you during this difficult time. the waiting sometimes is the hardest part when waiting for tests to come back. i really feel bad for all the struggles that you are facing and dealing with. i have found at the end of the day when i lay my head against the pillow that i am more at peace if i follow my heart even if others might get a little miffed at me. they love me they accept me, you know ?
by -Icy- on November 3rd, 2009
Rosie my sons whole family despises me for having my beautiful son however his great aunty has always stood by me and wants to be part of my sons life. The privacy act prevented her from telling me about this earlier because I am not a relative and my son is only 2 so she couldn't really tell him..lol. She had to hire lawyers so that the health board could contact me and let me know. She has not told my sons dad because she will lose her relationship with her sister who does not want to tell my sons dad. I think she might be in denial and does not want to consider it as a reality since her brother died from it when it was misdiagnosed. I don't understand these people as I would do anything to ensure my little boy was safe and healthy.
Icy thank you. Your support means alot. I know what you mean. I will meditate on it and listen to my heart about when and how to share this information and if my sons great aunty does not understand then maybe she is not the right person to b in our lives
by jesspants on November 3rd, 2009
i just wish you the best of luck in whatever you decide. you know your ab family and friends are here to help.
by -Icy- on November 3rd, 2009